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Consent and Confidentiality

When a volunteer arrives at the research site they are greeted by a member of our Field Epidemiology Team. They will explain to the volunteer what will happen during their visit. They will also ensure that they fully understand what the tests involve and what the samples and data collected will be used for. If the volunteer is happy with the tests that are to be carried out they are then asked to provide their written consent to participate.

We will only proceed with a volunteer’s involvement in a study if they fully understand what will happen during their visit and after they have provided their written consent to be included.

All of the data that we collect is strictly confidential and is dealt with in accordance to the latest data protection policies. The data is kept securely and safely within the MRC Epidemiology Unit’s infrastructure.  Much of the data is used anonymously, only being identified by a unique ID number. A volunteers’ personal information is kept in databases on a secure network within the Unit and is not available to those who are doing the data analysis.